Can You Keep Your Medi-Cal And Have A Part-Time Job Bone Marrow Transplant – What the Media and Medical Profession Do Not Want You To Know!

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Bone Marrow Transplant – What the Media and Medical Profession Do Not Want You To Know!

After I was diagnosed in January of 1989, the medical profession did its best to use me as a guinea pig. I think they do it because they know you are in shock and very vulnerable. At the age of 29 and three young children, I was definitely in shock. The doctor who diagnosed me said I would be dead in 3-3 1/2 years. The fear was overwhelming and I know now that I was unable to make a rational decision. I’ve decided to put off a BMT and keep my options open.

Finally, at the age of 35, I decided to have the BMT. My family members were tested and luckily I had two brothers who were both perfect. A BMT is not a surgical procedure but a non-invasive but very intense medical procedure. I along with nine others started the procedure the same day they did. We received three days of what they call lethal chemotherapy and then four days of total body irradiation. The only way to describe what they do to you is that they kill you and then do their best to try not only to revive you, but also to keep you alive for as many years as possible.

Call me the lucky one, but the other nine BMT recipients started dying almost immediately, and by the end of the first year, there were only three left. And during the next six months the other two succumbed to the BMT. Once you have OMT, leukemia is never the cause of death. The leading cause of death after OMT is graft versus host. Graft vs host is where your new bone marrow sees all these organs and foreign objects in your body and tries to get rid of them. Remember that you have donor bone marrow in you and the bone marrow sees your body as completely foreign. Doctors try hard to help the bone marrow adjust, but it’s usually a lost cause. I’m not absolutely sure, but my guess is that all of the other nine people lost their lives in the battle that took place within them due to the graft against the host.

After having the BMT I was tested multiple times to see if I had graft vs host but never did. I have had and get almost every other ailment and disease possible but I survived and am currently fine. Life has been very different than I expected. At 53, I am still unable to hold a full-time job. Chemotherapy and radiation do things to the body that doctors are still looking for answers to.

To give you a brief idea of ​​what I’ve been through– I’ve had pneumonia 15 to 20 times and each time was an average hospital visit of 2 weeks. I contracted shingles over 10 years ago and still get it occasionally. I had cataract surgery on both eyes. A month or two after the BMT my weight dropped to 114lbs – and at 6′ 2″ I had very little meat on my body. At my house I had to crawl up the stairs to the bedroom because I couldn’t stand up like that long.I have had double hernia surgery and many other painful maladies which still seem to persist.

I still have problems with my weight, so the doctors gave me a drug to increase my appetite so I could gain weight. It took me about 2 years to finally get to 150lbs, but today I have gained a lot more weight from the drug and I’m at almost 200lbs. This is about the perfect weight for my body.

To this day my main problems are severe fatigue and terrible digestive tract problems. But at least I’m alive and have seen all four of my children grow into adults. I currently have 3 nieces and 2 nieces in the bakery. Life isn’t necessarily great, but I know it could be so much worse.

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